Last night the Fast Track coaches, gymnasts and parents came out to support Brax at the U of M Gymnastics meet. Thanks so much to TCT for the continued support and thank you to all the parents who were able to get their kiddos there.
Also, big thank you to Coach Hansen, Coach Stenger and the whole U of M Women’s Gymnastic team for all of their support as well. Coach Hansen sent us home with a bunch of SWAG for Brax….very cool!!
Last nights win over Maryland put the Gophers at 5-0 (Overall) and 5-0 (Big Ten) That places them 1st in the conference and #16 in the nation. Go G-O-P-H-E-R-S!
Check out the FUN STUFF page for a video message from the team and a voicemail from Coach Hansen.
Also, TCT is having “Love Your Melon” Team Braxton hats made. Braxton has requested that all proceeds go as a donation to the U of M Children’s Hospital. They are $45.00. If you would like to purchase one of these, please see the options below:
Order forms are avail at front desk @ TCT
Call TCT to place order over phone – (763) 421-3046
Contact Erin or Dan (see contact info at bottom of FAQ page)
Today we were back at the ‘U’ very early for more treatments (Brax was up showering around 5AM and not very happy about it) . It was the same as last week, with (1) IT chemo (sedated for this one) and then (2) IV chemo treatments upstairs in the clinic. Blood work before the procedure came back good and no platelets needed. Overall, another very good day of treatments. Last week we mentioned how the info we are getting back is all looking very positive (see Chemo Sessions 5-7) and today was more of the same. After her 2nd IT treatment of her spinal fluid, Brax’s WBC count is back into the Normal Range! Normal being 0-5 and when initially diagnosed she was 583 and then 14 last week (with some blasts) and now down to 1. We won’t know for a couple days if there are any blasts, but regardless, things are working and it’s very encouraging to see her spinal fluid and blood responding so well. The big date is February 28th when we do the next bone marrow biopsy and that is the one we need to come back good. That is where most of her leukemia is concentrated and will give a more clear picture of how things are responding. We are praying for AWESOME results and are confident we are going to get them.
Please continue to watch the FUN STUFF page. Brax is the MN USAG featured gymnast this month – exciting stuff! Also, Brax is getting a lot of love and support from friends all across the country (many monster names and programs in the gymnastics world) and we can’t thank everyone enough for all the good vibes, words of encouragement and prayers. Please keep them coming.
And, to end the post Brax wanted to show the Valentine’s box three of her friends/classmates/neighbors made for her. Awesome job gals and thanks so much for keeping Brax included as much as she can be. It means a lot.
The last couple of days have been very uneventful, which is a good thing in this case. Everything at home has been going very well. Brax is still tired but has been transitioning between upstairs and downstairs for a change of scenery.
Today we had our first “true” Lab Day. Everything went well. Brax’s port access went better (very little pain) and all blood work is trending in the right direction. No infusions or platelets needed. Some more very encouraging news today was that there were NO leukemia blasts in her blood, granted she didn’t have many to begin with as most are contained in her bone marrow, we are still taking this as a WIN. Dr. Hilgers did mention that there are some rare leukemia cells found in her genetic testing, but we really won’t know how or if that will affect anything until the 28th of February after her next bone marrow biopsy. The results of that will be what steers the next phase of treatments. We are praying for AWESOME results and the ability to keep moving forward with planned treatments.
She also had a CT scan today to check on her stomach/intestines/liver. Everything there looks good.
And finally, knowing that she will be losing her hair she wanted to dye it before it’s gone for a bit . We don’t when she will really start losing it, but they anticipate sometime during this first month – some has started to fall out already while combing. She decided on a fancy pink ‘do with purple tips. They have a team on the floor at the clinic that does this for you – quite the service! FYI – Brylee is jealous!
Next appointment is this Thursday for (3) more rounds of chemo. One via IT and two more via IV. We are hopeful for more good results.
Thanks again to everyone for the the prayers and support. We are so thankful to be surrounded by an awesome group of family and friends.
Special thanks this week to Uncle Scott, Aunt Jayme, Brooklyn and Landon for coming with gifts and food; the (2) Dan’s for helping out with snow (nearly a full time job as of late); Uncle Mike & Aunt Doreen for the food and treats (no one will be going hungry); TCT for the continued support; Great G’ma Battaglia and Aunt Lisa, the Littlers, the Bonks, Loews and Otterblads, Uncle John & Aunt Jane for the gifts; G’ma & G’pa B for the extra hands around the house and helping out with the day to day; Maggie, Coach Kindler and the OU gymnastics team for the swag; and everyone else that has sent cards/texts/emails.
Brax saw this image yesterday and wanted it posted. She’s so thankful and humbled with all the support she is getting from family, friends and many people she’s never met from all across the country. Everyday someone is stepping up to help Brax through this and all of TEAM BRAX cannot thank you enough.
If you haven’t been checking out the FUN STUFF page – check it out!!
Also, as a thank you and to encourage continued support, Brax designed wristbands to pass out later this month. We will get them to anyone who wants them and if you don’t see us regularly or are out of state, just shoot a text or email and we will mail them out. She has Toddler/Youth/Adult sizes coming.
The U of M Oncology floor gives their patients a stuffed bear and all the tools/supplies to help the kiddos understand what a port is and how it works. In the post yesterday, we mentioned Brax was having her port accessed for the 1st time since leaving the hospital (basically putting the needle back into her chest to allow universal access for both blood draws and IV treatments/medications – much nicer/easier than being stuck every time – OUCH!)
Brax wanted to share a video detailing the procedure. Enjoy!
Brax started the day with an IT treatment (her 2nd of this type and 5th chemo overall). This was the first time she had to have her port accessed since leaving the hospital and it was a bit sore still, but she handled it like a champ. The cleaning was worse than the needle per Brax.
The IT treatment went very well (she is put to sleep for these) and her Nurse Practitioner Melissa Claar, who we met today and who will be heavily involved throughout this process, performed the procedure. She is great as well. The whole team is great.
After getting back to recovery and in between going up to the clinic for her two IV chemo treatments, Brax was able to get a quick bite. It was now around 1PM and she hadn’t eaten since about 1AM (yea, 1AM – she woke up and needed a bowl of Cinnamon Toast Crunch in bed). She was getting “hangry!” Fries, four nuggets and a pineapple mango smoothie later and we were happy and heading up to the clinic for more chemo.
We got up to the clinic and received her schedule for the next 7 weeks. It’s intense but she is doing great and it looks like things slow down a bit after the next 3 weeks.
Now here is where things get REALLY EXCITING. Due the fact that Brax doesn’t have many leukemia cells in her blood (mostly all contained in the bone marrow) we won’t get a real clear picture of progress until her next bone marrow biopsy on February 28. However, because they found leukemia cells in her spinal fluid and are treating that weekly, we are able to get a read on how that is going as the fluid is tested weekly and the results today were AMAZING!!
Below are the CSF (Cerebrospinal Fluid) Cell Count results from last week when she was diagnosed. Healthy individuals will be close to 0 for both WBC & RBC CSF and Brax was 583 and 233 respectively – yuck.
Today, after her 1st treatment from last week, her counts were already down to 14 and 3 respectively!! Nurse Melissa was very happy with the results and we were THRILLED, to say the least. And, in general, her overall CBC (complete blood count) was good with many key areas improving, which shows us that things are working and she’s getting better each day.
Thanks again to everyone for the calls, cards, texts, gifts and prayers. It’s helping all of us through this and please keep the prayers and good vibes coming. Today was a GREAT day and we are looking forward to many more.
Brax now has a week off from treatment to recover. She will go back for labs (and transfusion if needed) next Tuesday and three more treatments on Thursday.
Brax was feeling better today and did a great job eating and getting fluids in. Her last chemo session this past Sunday was a long one (longest yet and longest she will have during the Induction Phase) and knocked her down pretty good (very tired, but otherwise good). Vinny was called in today to do some doctoring and everything checked out good.
Tomorrow will be a long day. She has 3 consecutive treatments – (1) IT treatment (she will be put to sleep for this) and then (2) IV treatments following that. This will be her normal schedule going forward for the next few weeks. She has already had both the IV treatments and did very well. The IT treatment will be using Methotrexate. She was on that previously for her JIA and responded well, so we are hopeful tomorrow goes smoothly and she can get back home to recover for a week.
Brax got discharged today! She’s still pretty tired after her chemo from yesterday and the doctors have told us that will be pretty normal after treatments. We are hoping she bounces back a bit tomorrow. But overall the doctors are happy with everything so far and she’s right where she should be at this point in time.
Also, we got a call from Coach Fleck today. Dr. Sadak mentioned we were big football fans and got the ball rolling. Brax was excited to hear his message (message posted on Fun Stuff page) and he’s set some time up to meet her at one of her lab appointments on February 19th.
Nothing for the next couple of days now – going to try to get her on her “new” normal now that we are home. Our next appt is on Thursday and she will have 3 more rounds of treatment. One intrathecal (IT) in the spine (she will be put to sleep for that) and then two more IV treatments after that. It will be another big day.
Thanks again to everyone for the calls/texts/cards. It’s means a lot and we are very blessed to have a great network of family and friends.
Brax had her 4th round of chemo around lunch. This was thru IV again and her longest one yet (and longest one she will have during the Induction phase). She is doing great and we have been told we will be discharged tomorrow at some time, barring no set backs. We will normally have labs on Tuesdays, but with being discharged on Monday I don’t think we will need to come back until Thursday.
Brax is excited to get home and sleep in a normal bed and see Vinny.