Brax had a good night last night. Being back at the hospital is very familiar (feels like we never left). Her ANC was back up to 100 today, so we know things are working. We take all of this stuff as WINs. As mentioned yesterday, they want her ANC to be >=500, so she’s obviously not there yet, but she feels as good as she has this whole time and is still eating like a horse (thank you steroids!). The only thing we were not expecting, but understanding the reasoning behind it makes more sense, she will not be going home anytime soon. They said unless things really change, we should plan to be here for the remainder of her Induction Phase (end of February). They said with her numbers as low as they are, even though she is doing well, they don’t want to risk her going home and being exposed to anything that could get her sick (which would be dangerous at this point) and delay treatments. Blood work today showed no transfusion needed (great news!) and things are still on track for normal treatments on Thursday. They will keep her on antibiotics for now as well to help fight off anything she may be dealing with. Brax is OK with being here now that she’s back and going to make the best it. Her attitude throughout all of this has been very positive and is going to play a huge role in her speedy recovery. We have told her she has one job and that is to do everything within her power to stay healthy (mentally & physically). She has already requested her trike back so she can buzz the hallways in an effort to get some “exercise” in. She also made some bracelets today and the Family Life team has tons of stuff to do – you name it and they bring it.
Tomorrow Coach Fleck is supposed to visit. Brax is excited about that (so are mom and dad), so we will be sure to post tomorrow if schedules line up and it works out. Our schedule is pretty open 🙂
Also, for anyone wanting to help support Brax and the U of M, please make sure to check out the hats TCT is having made. Orders are due by 2/23. See the link below for more info.
Brax, good job keeping a positive attitude. It is so powerful and will keep you strong. We love you and are so proud of how well you are handling everything. “You Got This!!”