☀TB1F Summer Events – MiniGolf & Music!

Putt 4 Patients – Saturday, June 8 (Next weekend!)

Kick off summer with TB1Fund at the Putt 4 Patients event in the SCHEELS parking lot! ☀️⛳
Join us for an afternoon full of mini-golf, KFAN & K102 Radio appearances, bounce houses, food trucks, tons of prizes, and MORE!

The first 200 guests will receive a P4P x UNRL hat or T-shirt. The event will be the start to TB1F’s annual toy drive! ❤️

⛳ Mini-Golf Course
🎪 Bounce Houses and Challenger courses
🎙 KFAN & K102 radio personality appearances
🌭 Chick-Fil-A, Jonny Pops and More!
🐻 Mascot Photo Opportunities
🎶 GenNow DJ
🎨 Face painting and caricatures
🏈 Pro Athlete Appearances
🎁 TONS of prize drawings
🚘 NEW cars on display: Presented by BMW of Minnetonka
🎟️ Tickets can be purchased through the link OR on-site the day of the event

Any toys donated at the event will earn you 5 prize drawing tickets!
BONUS tickets rewarded for toys bought from SCHEELS. 😍🧸

Visit www.TB1Fund.org for more details, FAQs and to purchase tickets!

Summer Sounds – Music with a Mission – Fri/Sat, July 19 & 20

Summer Sounds tickets are moving fast and with 5 Nashville Acts over 2 Nights, this is a weekend you don’t want to miss. This event is like no other concert in terms of value and intimacy. We hope you can join us and experience a show like no other. We have chosen to keep beverages FREE for everyone based on ticketing tiers. VIPs enjoy exclusive access to the BMW VIP Tent with FREE food from 6-8PM each night, in addition to all-inclusive beverages from any of the 3 bars and VIP tent.

Buy yours at the current price or before they sell out!

Important Ticket Updates
Limited VIP Tickets and VIP Tables remain.

Current ticket prices valid through Friday, June 14 at 11:59pm CST. Prices increase June 15.

BUY TICKETS NOW before price increase.

FRIDAY, JULY 19th
Gates open at 5PM
Headliner: Adam Doleac
Direct Support: Chase Wright

SATURDAY, JULY 20th
Gates open at 4PM
Headliner: Michael Ray
Direct Support: Noah Hicks
Special Guest: Abbie Nylin

General Admission tickets starting at $15-$50 per night or $25-$85 for the weekend. All-inclusive soda and water included in ticket price.

GA with Full Beverage Package tickets are just $100 per night or $165 for the weekend! Enjoy unlimited beverages from any of the 3 bars. Alcohol is not avail to purchase, MUST have the package – keeps lines short and drinks in hand.

Summer Sounds proudly serves Tito’s, Dobel Tequila, and Pendleton Whisky & STILLY.

Limited VIP Tickets and VIP Reserved Tables remain.

CLICK HERE to buy tickets now!

For more information, updates , sponsorship opportunities and FAQs visit: www.summersoundsmn.com

Presenting Sponsor

’23 YE and Jan ’24 Brax & TB1F Updates

2023 went pretty quickly overall considering Brax was going through intense chemotherapy and immunotherapy. Our neighbor once told me when the girls were very young that “the days are long but the years are fast” and we have found this to be true in cancer treatment as well. Some days, just getting through the day, can seem to wear on you like a week worth of work/stress, but before you know it a month has somehow passed. When initially diagnosed with leukemia and told it will be 2.5 years of treatment and then 2 years of treatment when Brax relapsed it feels that you can’t even imagine that much time and how you will get through every long day, but it somehow has a way of going fast as well. Brax has a little over 9 months left of treatment and we are sure to experience many long hard days, but before we know it 11-15-24 will be here and we will absolutely experience so many great days along the way as well.

December had some challenges for Brax – an unexpected hospital stay right before Christmas, a lingering cold that didn’t want to go away, having to hold oral chemo due to low ANC & platelets, and even a case of pink eye. As always, Brax found a way to make the best of tough situations – the power of positivity, mental toughness, faith, and surrounding yourself with the right people is truly a game changer.

We had a fun evening with our neighbors attending one of our favorite Christmas movies – Christmas Vacation – which had a few select dates in theaters this year to kickoff the holiday season.

Brax was finally able to do the annual TB1F Electronic Giveaway at Masonic in person. She had so much fun gifting the patients at the hospital with awesome electronics to try to help ease the burden of being inpatient for the holidays. Our friends at UNRL partnered with Brax & TB1F to give patients the opportunity to receive one of their Limited Edition Minnesota Vikings hoodies that were sold out in stores. DJ Mad Mardigan from GenNOW provided the music for the lobby party and Chick Fil A & Cub provided food and drinks for this fun event that featured Goldy and the Cow from Chick Fil A.

Brax was able to attend both sides of the family Christmas parties this year. It was so good to head up north for a few family filled days of fun and holiday cheer on the warmest MN Christmas ever. We were very thankful to be outpatient and in the position to travel and see family.

Brax & Bry are both so excited for the Olympic Trials to be coming to MN this summer. Brax was able to attend an event at MOA hosted by Minnesota Sports & Events that showcased gymnastics at all levels. She was able to meet Suni Lee and be around others that love the sport as much as she does.

In January Brax was starting to feel better and was able to do more. Her sister Brylee’s Level 8 gymnastics season was officially underway. Brax was really looking forward to attending her travel meet in Knoxville, Tennessee this year, but her lingering case of pink eye delayed some of her treatments and she needed to stay back in MN. Bry had a great time with her teammates, but really missed her sister. They may or may not admit it, but Brax & Bry are best friends and are always 100% there for one another through everything. When one hurts, they both hurt and when good happens they celebrate together. This whole cancer thing really takes a toll on not just the patient, but the rest of the family as well. Brylee is the reason why Sibling Days and family days are so important to Brax and TB1F. Siblings sacrifice so much! You do your best to try to keep life as normal as possible, but the truth is there is nothing normal about this way of life. You can physically see cancer affecting the patient, but the side effects that siblings experience are often silent from the outside world. As parents you must continue to believe in the greater plan and know that calmer waters are ahead for everyone in your family.

At the end of January, Brylee turned 12 and we were able to celebrate in person. Last year Brax ended up inpatient for every single birthday, Mother’s Day, Father’s Day, New Years, and Thanksgiving, so this year we will not take anything for granted and celebrate them all (hopefully outpatient).

Gopher Women’s Gymnastics asked Brax to be an Honorary member of the team for their Always Dreaming Cancer Awareness meet. This meet is special since it brings awareness to cancer and how it has affected everyone in some way, shape, or form. The team did their warm-ups in the Team Brax TB1F leo. It was an amazing honor to see the team, at the school she loves, wearing her leo. They also did a toy drive to collect toys for Brax’s Toy Closet on the 5th floor of Masonic Children’s hospital where Brax has spent 200 nights.

Dr. Sadak, our primary oncologist the first time through treatment, organized a halftime scrimmage at the Gopher Men’s Basketball game vs Wisconsin. Staff of the Journey Clinic and former patients played in the Coaches vs Cancer Hardwood Heroes Game. Its intent was to bring awareness to the importance of cancer research and was a fantastic group of people to share the court with.

A few other things Brax has been up to included: attending her first high school gymnastics meet, going to the St. Thomas vs UMD exhibition hockey game that featured 2 of her favorite hockey players, attending her cousin Brooklyn’s basketball tournament in Forest Lake, going to the Mean Girls movie reboot, PT, working out at home, attending Brylee’s meets, and getting outside to enjoy the spring like temps.

We have lots to look forward to in 2024! We are especially looking forward to the end of treatment in November, but trying not to wish the time away as well since we know it will somehow go quickly even through the long hard days. We Got This!!!!

Also, a few dates to save if you are able to make any of the events coming up this year.

Champions Cup – TB1F’s adult only, largest single day fundraiser of the year. Friday, April 26

Putt 4 Patients and Annual Toy Drive at Scheels – Saturday, June 8. Mini golf, face painting, caricatures, fair food, bounce houses, and DJ. Family Fun!

Summer Sounds // Music With A Mission – Fri, July 19 & Sat, July 20 – we added a 2nd night this year and are bringing in (4) acts from Nashville…details coming soon!

Info on any/all events can be found at www.TB1Fund.org

Fall/Winter 2023 – One Year Down & One Year to Go!

Before we get into the update, we’d ask you to take 2 minutes and nominate TB1F (or any MN nonprofit of your choice) for the Scheels $50K giveaway ending this Thursday 12/14. 10 nonprofits will each receive $5,000/each. Visit this link to nominate -> Scheels Giving Campaign Thanks Scheels!

Hard to believe it is already December! Brax had a really good fall overall. She started and completed her last round of immunotherapy and has now moved into the second and final year of treatment. She is set to complete her relapse treatment on November 15, 2024….less than a year to go!

Brax has been busy with school at home and going to different sporting events. She went to several Gopher football games, UMD vs UofM hockey, and a Timberwolves game. She is looking forward to gymnastics meets starting up again soon as well. Brax has been able to visit her friends and coaches at TCT and it has been really nice to get back in the gym. She is excited to watch the Twisters & Gophers this winter since she was inpatient for a majority of their seasons last winter – 99 days inpatient for relapse treatment so far to be exact. Brax was very excited to have the honor of hosting Floyd of Rosedale (the rivalry trophy between MN & Iowa for football) for a day. She went to the hospital, UNRL, BMW of Minnetonka, Westwood Intermediate & Middle School, and ended with a happy hour at the Butcher and the Boar. 

Brax has also had several TB1F events/programming this fall. TB1F launched a new program with the Rebound Club to give patients and families a VIP experience at MN Timberwolves games. Another new program that has been a huge hit at the hospital has been Music Mondays. Our friends at GenNOW have been able to come into the Zucker Broadcast Studio to showcase and share their DJ talents. It all ends with an awesome song request mash up dance party. We had another TB1F Sibling Day and hosted the movie Trolls 3. Braxton’s Buddies is here for a second year of giving patients & families a VIP experience for MN Vikings games. We have extended our Gopher offering to not only football, but also gymnastics, hockey, and basketball this year. Brax is so excited for the new TB1F Rehab space to open at Masonic in 2024. This space and legacy project is so important to Brax and she can’t wait to see this finished product and for patients to get to use this space to get stronger and feel better both physically & mentally. Finally, we want to thank everyone who donated to “Give to the Brax” this November and an extra special thank you to Carousel Motor Group for matching donations. TB1F was able to raise over $28,000 to support Brax’s programming for patients & families at M Health Masonic Children’s Hospital.

Brax was able to celebrate several birthdays for family & friends this fall in person compared to last fall while inpatient. We also welcomed a new baby Battaglia cousin Emmett. We can’t wait to plan a trip to Arizona to hopefully meet him soon. Brax celebrated her 14th birthday at the end of November. Her birthday usually always falls over the Thanksgiving break so she ends up with a 4 day celebration most years. Last year she was inpatient for her birthday so she was very thankful to be able to celebrate with friends, family, food and football this year. It is crazy to think she started her battle with cancer just shortly after turning 9 and will continue fighting until 10 days before turning 15. She has missed out on so much but has also developed a unique perspective on life that is wise beyond her years. We hope everyone has a wonderful holiday season! We have lots of exciting things coming in 2024!

Wishing you all a very Merry Christmas and Happy New Year!

One last reminder too….please consider nominating TB1F for Scheels Giving Campaign and chance to take home $5000. Visit this link to nominate -> Scheels Giving Campaign Thanks Scheels!

Give To The Max 2023 – Thursday, Nov. 16th

It’s almost time!!

Give to the Max 2023 is Thursday, Nov 16th! This is the single biggest donation day of the year for our foundation and this year Carousel Motor Group has stepped up again with a huge $20K matching donation. Please consider making a gift of any amount – $5, $20, $100. Every dollar donated with be matched dollar for dollar up to $20K!!

As an added bonus, all donations of $5 and above will receive (1) entry for every $5 into a drawing for 1 of 2 Brax Packs (swag bundle picked out by Brax for you, which also include either a signed PJ Fleck Book or signed Jason Zucker Give16 x TB1F Hat!)

In addition, all donations of $25 automatically get a TB1F Good Vibes Coozey and all donations of $50 or more automatically get a TB1F Good Vibes T-shirt (if desired).

Help us help others this November and DOUBLE your impact.

It takes less than 3 Mins and EVERY $5 counts!

Visit www.TB1Fund.org or Text TB1Fund to 56651

***WINNERS DRAWN MONDAY 11/20, BUT MATCH RUNS ALL MONTH LONG***

July /August/September 2023 – End Blin #2 and Continuation #2

Dude Perfect, 4th of July, Twins Game, CMG Toy Drop, PT, Team One Four, Summer Sounds, Barbie, 3MOpen, Golf, Helmet Reveal & RTB BBQ, Spirit of the Flame, Gophers Football, 8th Grade, Will Francis, September Go Gold.

How can it already be back to school??? July went by lightening fast, but Brax had a really great month and it almost felt “normal”. We started out with a bang and went to Dude Perfect in St. Paul. We were joined by a great group of friends and family and all the kids had a blast.

Our 4th of July was pretty low key and was spent grilling and hanging out with family.

Our family attended the MN Twins game with our good friends the Flecks & Wudels. It was so great to get the gang together and enjoy a beautiful summer night at the ballpark.

Brax officially ended the second round of the immunotherapy on July 11th. This was also the same day that the toys from CMG x TB1F toy drive were delivered to the hospital. It was a huge success with hundreds of toys being delivered. Brax was so thankful to have her treatment break fall during summer vacation. She was excited to spend time with friends, family, and enjoy swimming.

Brax was happy to attend a party in honor of her good friend Casey O’Brien and his Team One Four Fund. He has raised over one million dollars to enhance & upgrade the infusion center in the Journey Clinic. This is where Brax goes for all of her outpatient care – chemo, transfusions, labs, exams, etc. Congrats Casey!

Brax & Bry have been doing lots of PT & OT this summer!

Summer Sounds was July 15th and Brax was so excited that the concert fell during her treatment break! Brax was able to use her connections at Gopher football to give Michael Ray and friends a tour of the football practice facility and Huntington Bank Stadium. The girls thought it was pretty cool to cruise around the cities with MR. Finally, it was time for the big concert – the weather was perfect, no mosquitoes, amazing music, top notch food & bev, and everyone had a blast! TB1Fund and Brown Boys raised over $339,000! Huge thank you to our sponsors, partners, and guests!

We ended July with a week at TPC in Blaine for the 3M Open. Brax has been a part of the tournament since it started in 2019 and it is always a very fun week!

Continuation #2 started as anticipated with a tough week of steroids but the next few weeks of treatment went well. Gopher football asked if Brax and her 2 time cancer survivor & heart transplant warrior friend Megan to unveil one of the new helmets for the upcoming football season. The last time Brax was in the auditorium in front of the entire football team was December 2019 when she gave a pre Outback Bowl speech about her cancer journey. She had just turned 10 when she gave that speech and it’s amazing how her relationship has grown over the years and it’s crazy to think she will be 14 next month. After the unveiling we attended the annual Row The Boat BBQ – It is always so much fun to go to see the coaches and players interacting with all sorts of kids & families that are dealing with or have dealt with medical issues.

Brax received the unexpected news from USA Gymnastics that she was the 2023 recipient of the Robert Miller Spirit of the Flame Award. Our family was very hopeful that we would be able to make the trip to San Jose, California and attend US Championships and the Hall of Fame dinner where Brax was set to receive the award. Unfortunately, her cancer treatment had other plans and her platelets were too low for her to make the trip. We were thankful that she was able to stay fever free and out of the hospital and we enjoyed cheering on TCT from home and seeing pictures from Sarah & Steve accepting it in her honor.

Brax is in 8th grade and will be doing online homebound schooling this year and Brylee is in 6th grade. Brax was only in school for a week before a fever landed her in the hospital. The same thing happened during the end of Continuation #1 so we were not really surprised even though we were hoping to stay outpatient longer. During this stay Brax was able to get to know a new cancer buddy Will. He has the same cancer as Brax and unfortunately relapsed as well. With them both being inpatient at the same time they were able to get to know each other better and discover so many similarities in life and in their cancer journeys. Brax was thrilled to be outpatient and see Will represent Masonic and throw out the first pitch when the MN Twins celebrated Cancer Awareness Month at the end of September. Brax really looks up to Will and is amazed how he continues his passion of hockey even through 2x Leukemia. She cannot wait for his return to the ice and to watch him skate for UMD again. WILLPower!

Brax has been able to attend all the home Gopher football games so far this season. It is a goal for her to make them all and for the team to keep the Axe on her birthday as the grand finale at home!

Childhood Cancer Awareness month ended with TB1F hosting the MN Champions Tour at the hospital at the end of September. The tour pays tribute to MN Olympians and was a fun filled afternoon for patients and families. UNRL joined the party and gave away clothing to patients – how cool to be able to shop UNRL clothing during your hospital stay or clinic appointment. We also had face painting, Johnny Pops, Red Savoy Pizza, Maui Wowi Smoothies, and awesome music from GenNOW and DJ Mad Mardigan. Thank you Cub & MN Champions for helping to brighten days for our patients & families during the month we Go Gold!

Up next for Brax is starting the final round of Blin (immunotherapy). She will be inpatient for 4 days to start and will continue the rest of the 28 day infusion outpatient. After Blin she will get a week off of treatment and will start Maintenance Therapy after and until she officially finishes her treatment on November 15, 2024. We are looking forward to having the most intensive part of treatment behind us and continuing to move forward.

#We Got This

Please continue to pray for all of our friends going through treatment.

End of Continuation #1 & Start of Blin #2

Friday, May 12th Brax made counts and was able to start the final phase of the chemo block Continuation #1. It was a big day of treatment consisting of an LP w/chemo, 2 – IV chemos, chemo pills, and 4 days of IV chemo pushes. Brax had been feeling really good for the most part up until this treatment and it really kicked her butt. Brax was bummed she was not able to attend WineFest the next night since TB1F & our family were receiving The Ambassador Award from M Health Fairview Masonic Children’s Hospital. I guess it wasn’t meant to be since that very same night she spiked a fever and needed to go to the ER. We were all shocked how fast her counts dropped and she needed to be admitted. We knew this would probably happen at some point during this tough phase but it surprised us how quickly it happened.

During what ended up being a 17 day hospital stay Brax felt pretty good once she got through the first few days of fevers. She was able to enjoy her first “Music Monday”. This is a program that is presented by TB1F and features our friends from GenNow. DJ Mad Mardigan was in the Zucker Family Suite & Broadcast Studio to share is DJ talents. Patients are able to join in the studio or watch from their rooms. We were able to learn some DJ basics and enjoy a dance party where you can request songs and even mash them up. It was so much fun and Brax even wanted to go down to the studio after the broadcast. Bry was able to come visit Brax and they were able to take advantage of the EndZone and all it has to offer. This was Brax’s first time visiting that space since her relapse and the girls had a blast doing crafts and playing sports (not too different from the time they spend together while at home) We are so thankful for the amenities and all the hospital has to offer to help patients have some fun while inpatient. Brax was discharged on Memorial Day and we were very thankful to be home and to grill and hangout as a family.

The girls wrapped the school year and Brylee was cleared to return to gymnastics just in time for summer training. We had our 3rd Annual Putt 4 Patients on Saturday, June 10th. This year the event took place at Scheels in Eden Prairie and it was a really fun day. Brax was very thankful she was able to attend and excited to see a great turnout of hospital families, friends, family, TB1F supporters, and Scheels shoppers. Check out the link below for a video recap from the day.

Putt 4 Patients 2023 Recap Video

On Monday, June 12 Brax started the 2nd round of Blin – the new immunotherapy drug. It was a 4 day inpatient stay so it seemed pretty quick compared to most of our stays at Masonic. She developed some flulike symptoms but that is very common when starting the drug.

Sunday, June 25th we hosted our 2nd TB1F Sibling Day at Top Golf! This event filled fast and we were excited to provide an opportunity for families to get together and have some fun.

Some other things Brax has been up to since we last posted include: PT, getting outside, seeing friends, family events (Max’s birthday, Father’s Day, Jim & Allie wedding shower) Pay it Forward Golf Tournament, Hailey’s Grad Party, seeing a few movies in the theater, and all the excitement around the announcement of the 2024 Olympic Trials for GyMNastics taking place in MN.

We have one more really big event coming up this July (less than 3 weeks). We have settled on (3) fundraising events per year and they are all unique in their own way. But this July 15th we are bringing back our 3rd and final event of 2023, Summer Sounds, and partnering with Brown Boys Benefit to bring multi platinum recording artist Michael Ray to town. We are an official tour stop on his 2023 national tour and he will be supported by locally born, Nashville based country artist Alannah McCready. We are excited to bring an act of this caliber to a relatively intimate venue. If you are interested in coming to the show or would like to help volunteer, please see the link below. We do need to fill some volunteer spots still. If you already have your tickets, share with your friends and family. We want to #FillTheField on Saturday, July 15th.

Summer Sounds Tickets & Volunteer Opportunities

Continuation #1

Brax started the next phase of treatment called Continuation 1. This phase is a mix of several types of chemo – 10 to be exact. The first week was tough due to steroids more than the IV, IT, and oral chemos. Steroids used in high doses act like a chemo in leukemia treatment. Unfortunately steroids are a big part of Brax’s treatment plan. After the first 10 days Brax started to feel pretty good and had a couple easier weeks. She was able to attend birthday parties for her baby cousins Maisy & Siena who both turned one. Brax & Bry also wanted to host Easter brunch. It was nice for Easter to feel pretty normal with us attending church together as a family, enjoying brunch, and watching the Masters. Her counts were good for the most part so she was able to see some friends, go up north for a few days, and just be a teenager for a bit.

April 10th was National Siblings Day and TB1F wanted to celebrate siblings and the important role they play during treatment. We partnered with our friends at Red’s Savoy Pizza and treated patients and families to dinner. Speaking of siblings, for those of you who may not know, Bry had a fall on bars at gymnastics and dislocated & fractured her right elbow and also had a less severe fracture to her left. She was bummed to have to miss her State meet, but had a blast cheering her Level 7 TCT team to a State Championship. Elbows are tricky and it is a long recovery process, but she is doing what she can to get back to doing what she loves.

Brax was excited to go to Top Golf for the first time with Grandma & Grandpa. She has been wanting to go for awhile and one of the positive things about going to school online at home is the flexible schedule. She had a blast and is looking forward to spending more time golfing this summer. Brax continues to go to physical therapy and has made a lot of progress over the past couple months.

Friday, April 28th was set to be a big day – Brax was hoping to start the final (and toughest) phase of this Continuation block of treatment and it was the the same day as the 3rd Annual Champion’s Cup. Brax did not make counts (ANC & Platelets needs to meet a certain criteria in order to start the next round of treatment) and she was not able to attend the event in person this year due to being immune compromised. The event was a huge success with TB1F raising over $410,000 for the event and over $1.1Million since Brax created her foundation in September 2019. Huge thank you to all of our sponsors, partners, and donors that continue to support Brax and TB1F.

Since Brax had her treatment delayed she was feeling good enough to attend the Scheels Eden Prairie Family Fun Day. This event made it possible for Scheels to donate $5,000 to TB1F to help brighten the days of patients and families at M Health Fairview Masonic Children’s Hospital. Scheels in Eden Prairie will be the location for our 3rd Annual Putt 4 Patients presented by BMW of Minnetonka on Saturday, June 10th, 2023. Tickets and more info are available at Putt 4 Patients Info This event is whole-family friendly afternoon.

Finally, we and Brown Boys Benefit had the pleasure of meeting Michael Ray who will be this year’s headliner at our 2nd Summer Sounds Charity Music Festival. The concert will be Saturday, July 15th at Willow Tree Winery in Ham Lake and you won’t want to miss it! Tickets on-sale now Summer Sounds Info These are selling fast due to Michael adding our stop to his 2023 National Tour stop. Alannah McCready is back to open the show again this year too!

More importantly than anything we do is the health of our kids and we’d ask that you continue to keep Brax in your prayers as well as her buddies, especially Megan and Casey right now. We will update again in June!

Blin Cycle #1

Brax was finally discharged after a 26 day inpatient stay for Block 2 of treatment. It felt great to be home and sleep in her own bed and have a mini break before starting the next cycle of treatment. During the break Brax & Bry went to UNRL for a photo shoot for the UNRL x BRAX collection. Both girls had a blast and we were excited with how the gear turned out. Brax is honored to be named an official UNRL Athlete and represent the clothing brand, not to mention they are great friends and people.


On Friday, February 10th Brax was once again admitted to start the first cycle of Blinatumomab (aka Blin). This is the new targeted immunotherapy drug that we are hoping will be the cure for Brax this time around. The med is programmed to hunt out leukemia cells that may be hiding and go undetected and lead to another relapse. The best thing about this med is that it only kills the bad cells, unlike chemo that kills all cells. This means Brax should feel better and have better blood counts during this cycle of treatment. That ultimately leads to her having more energy, getting to see friends & family, and getting to get out into the world more. Typically kids who are MRD negative at the end of the first month do better with this med and thankfully that has been the case for Brax. You need to be inpatient for 72 hours the first time you start the med since there are several side effects that need to be monitored. Brax has not experienced any side effects so far and is doing great. The only catch is that a Blin cycle is 28 days long and she is having a continuous infusion the entire time. This means she is accessed (port needle in her chest and hooked up to the med) the entire time. She was discharged after 4 days inpatient and we have been working with Fairview Home Infusion for her outpatient care. She has the new IV med bag delivered on Tuesday night and a home healthcare nurse comes on Wednesdays to swap things out. She is in charge of changing the batteries on her pump every 48 hours to make sure there are no interruptions to her med. Brax is in clinic on Fridays to get labs, meet with her team, and change her port needle. She had a lumbar puncture with chemo to start week #2 of the Blin and meet with her team in sedation. They are very pleased with how things are going so far. Brax has been able to see a few friends, go to TCT a few times, cheer on her sister and other teammates at Twisted Moose & Northern Lights, go out to eat, and start outpatient physical therapy. Brax finished Blin Cycle #1 on March 10th and will get a one week break from treatment before she starts the next phase, which will once again be different types of chemotherapy.


Shout out to Twin City Twisters – Brax & Bry’s gymnastics club. Brax was an honorary team member at Winter Cup and the TCT Elites dedicated the meet to her. Congrats on an incredible start to the Elite season. TCT hosted Northern Lights and Brax’s teammates competed in a special Team Brax leo to show their amazing support. Brax was able to join Brylee/coaches/teammates on the floor for this meet and it was special for our entire family. We could not be more proud of our TCT family and all of the support they have given Brax, Bry, our family, and TB1Fund.

Thanks again to everyone to continues to check-in on Brax and support her in numerous ways through this relapse.

Also, please keep an eye our for upcoming TB1F events. Date are now officially set and there is some fun stuff coming.

Friday, April 28 – 3rd Annual TB1F Champions Cup (Sold Out)

Saturday, June 10 – 3rd Annual TB1F Putt4Patients by BMW of Minnetonka. This year we will hold this event at Scheels in Eden Prairie and tickets go on sale April 8th. Family Friendly Event!

Saturday, July 15 – 2nd Annual Summer Sounds Concert. We are back this year with Alannah McCready returning, along with headliner Michael Ray! Michael’s team has name our stop an official 2023 National Tour stop which has added some wrinkles, but we are so excited to welcome Michael to town this July. Tickets on sale now! For more info see link below.

https://tb1fund.org/tb1f%2Fbb-summer-sounds

Hopefully we will see everyone at one or more of these events!

HAPPY NEW YEAR!

Brax continued to move forward with Block 2 of chemotherapy treatment at the end of December. Block 2 is another intense block of treatment following her 30 day inpatient stay for Block 1 Induction. Due to no evidence of disease after her bone marrow biopsies her team decided to continue along the chemo path for Block 2. We were thankful that Part 1 of Block 2 was outpatient since that allowed Brax to be home for Christmas and a majority of Brylee’s holiday break.

On December 30th Brax started Part 2 of Block 2 and this phase included a sedated lumbar puncture, 36 hours of methotrexate, and another Peg all to be done inpatient. She needed to stay inpatient until her body cleared the methotrexate. Good news is that she cleared the chemo very quickly but bad news is she had a very rare reaction to the chemo that created chemical like burns on her hands & feet. It was extremely red, swollen, and painful. Due to her blood counts being good they let us go home with an antibiotic and a huge tub of Aquaphor to recover. It was painful for her to walk and use her hands, but she was thankful to be at home. She also developed mouth sores, which are a common side effect, that delayed her from starting part 3 of treatment until they healed.

On Tuesday, January 10th she was admitted for Block 2 Part 3 which is all inpatient. She had 10 chemos in 5 days (5 cytoxan & 5 etoposide) which was very intense and definitely one of the tougher treatments she has experienced. The doctors want to keep her inpatient until her counts bottom out and start to recover before she can go home. Since this is her second time going through therapy she is even more at risk since the body has already been through 2.5 years of chemo and radiation. Brax is exhausted & nauseas but hanging in there – we will be happy to put this block behind us and move on to targeted therapy for her next round of treatment. We finally received the results of the genetic testing from her leukemia. Our team has decided that between the results of her bone marrow tests, her genetic testing, and consulting with a few other experts in the field that Brax will go down a 2 year chemotherapy path. The difference this time will be the introduction to a new targeted immunotherapy drug Blinatumomab (aka Blin). This drug hunts out the leukemia cells that may be hiding and going undetected. Our team is hopeful that the combo of chemo and Blin will be the cure. We would still have the option to use CAR T or Bone Marrow Transplant if needed in the future. Hopefully we won’t need these options but always nice to have options just in case. Brax received a blood transfusion and her first IVIG infusion after her counts bottomed out about 10 days after starting chemo. Now we are just waiting for her counts to recover before being discharged. We are looking forward to having Block 1 & Block 2 behind us and moving on the Blin cylcle 1. She will start this cycle inpatient for a few days but the rest should hopefully be outpatient and she should feel much better!

And for anyone looking to get out and support TB1 Fund, our 3rd Annual TB1F Champion’s Cup presented by Cub is back this April. If you’ve been before, you know what to expect (some new additions this year though). If you have never been, it’s fun night and you wont be disappointed….promise! One BIG addition this year, PA will be calling the (4) races…..he’s is going to put his spin on things….buckle up!

To learn more, see past year’s videos or purchase tickets visit the link below.

www.TB1Fund.org

Induction Complete – Week 4 of 4 & Further Testing

The final week of re-induction was very low key and that is exactly what you want when you are in the hospital. “Boring is Good” is a quote one of the attending oncologists says and it is very true. Brax had her last chemo of this block and all went well.

Brax & Bry – Sister Time in Hospital

They continued to keep her on IV antibiotics to help keep her from developing an infection with her blood counts being so low. She felt pretty good for the most part and was able to get in several walks around Unit 5 and a couple sessions of PT. Trimester #2 started at school and Brax started up a few of her classes after taking the first few weeks of treatment off to focus on her health.  After the 4 week treatment plan for Block 1 was complete it was time for her big day of testing. All went well with her bone marrow biopsy and diagnostic lumbar puncture. The team in the hospital and her personal team both thought it was safe for her to go home and wait for results. After 30 days of being inpatient Brax was so excited to go home and sleep in her own bed and see her puppies.

The Boys! Ranger on left, Riggins on right.

She enjoyed a few days at home before going into clinic on Friday for labs/exam. The results from her tests on Tuesday were all negative for leukemia, but with having so few white blood cells present our team decided they wanted to repeat the bone marrow biopsy on 12/23 so she would have more cells available to give the most accurate results. We also learned that Brax’s leukemia may have a genetic factor that could change the course of her treatment. The bone marrow with cancer that was originally collected on November 9th was sent away for special testing. Once the genetic results and the results from the upcoming biopsy are back our team will create a treatment plan for Brax. We are hopeful to have results back around the end of the month and move forward with a plan in early January. We had a very nice Christmas and we’re all very thankful that we could be home and together.  The day after Christmas we received the great news that the second bone marrow biopsy confirmed that Brax was negative for leukemia. We are still waiting on the genetic results since they will play a major role in her treatment plan moving forward, but to have her in remission after the first month is a big WIN. We will be going inpatient once again on 12/30 and continuing moving through Block 2 of the chemo path for now. We will continue to wait patiently while Brax’s team gathers all the information they can before deciding on the best plan to cure her for good. Hoping everyone had a Merry Christmas wishing everyone a Happy New Year! We are happy (and Thankful) to be moving into 2023 cancer free, albeit the treatment path uncertain, we have the best team around.

Brax & TB Bear on the way out!